Thursday, March 18, 2021

Protect, respect, connect –decisions about living and dying well during COVID-19

CQC's review of 'do not attempt cardiopulmonary resuscitation' decisions during the COVID-19 pandemic
care quality commission

The independent regulator of health and social care in England

Protect, respect, connect – decisions about living and dying well during COVID-19

Download the final report here

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"Personalised and compassionate advance care planning, including DNACPR decisions, is a vital part of good quality care. Done properly, it can offer reassurance and comfort for people and their loved ones – before and during difficult times.

It is vital we get this right and ensure better end of life care as a whole health and social care system, with health and social care providers, local government and the voluntary sector working together.

COVID-19 has brought this to the fore but these are not new issues. While this rapid review was not asked to make judgments on how decisions might have impacted individual cases, we have to take this opportunity to address these problems.  We need to make sure that people have the opportunity to discuss their wishes about care and treatment in a compassionate and person-centred way."

Dr Rosie Benneyworth, Chief Inspector of Primary Medical Services and Integrated Care, CQC

 

We were commissioned by the Department for Health and Social Care, under section 48 of the Health and Social Care Act 2008, to conduct a special review of Do Not Attempt Cardiopulmonary Resuscitation (DNACPR) decisions taken during the COVID-19 pandemic.

Our interim report published in December 2020 found that a combination of unprecedented pressure on care providers and rapidly developing guidance may have led to decisions concerning DNACPR being incorrectly conflated with other clinical assessments around critical care.

In our final report published today titled 'Protect, respect, connect –decisions about living and dying well during COVID-19' we share our full findings and recommendations.  

You can read our full press release, report and easy ready on our website.


What did we find?

When done in in a personalised, caring and compassionate way and at an appropriate time– , conversations around end of life planning can be an important, empowering and integral part of good quality care. 

The review found worrying variation in people's experiences of do not attempt cardiopulmonary resuscitation (DNACPR) decisions during the pandemic. While there were some examples of good practice, we also heard from people who were not properly involved in decisions, or were unaware that such an important decision about their care had been made.

Our findings and recommendations are centred around three themes; 

  • Information, training and support
  • A consistent national approach to advance care planning
  • Improved oversight and assurance

You can read the full findings and recommendations here. 


Ministerial Oversight Group

Among its recommendations the final report calls for the establishing of a Ministerial Oversight Group – working with partners in health and social care, local government and the voluntary sector – to take responsibility for delivering improvements in this vital and sensitive area.

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protec

#TalkEndOfLifeCare

Everyone should think and talk about how they would want to be supported and what matters most to them, if they became seriously ill or approached the end of their life. We're using #TalkEndOfLifeCare across social media, alongside Compassion in Dying, who also launch their report today, 'Better understanding, better outcomes: what we've learned about DNACPR decisions before and during the Coronavirus pandemic'. Use this # and join the voice of providers, families and partners keeping this topic in the spotlight.


Latest Blog from Dr Rosie Benneyworth

In her latest blog Dr Rosie Benneyworth, Chief Inspector of Primary Medical Services and Integrated Care, talks about our new report and the importance of good end of life care planning. 

You can read the blog here. 


Podcast coming soon

We'll be publishing a podcast discussing this issue shortly. 

You can find all our episodes of CQC Connect on Soundcloud and most podcast providers.

Podcast mic


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